Wheelchair Lifestyles

Where all the cool wheelchair people hang out

Recent Comments

Fibromyalgia

Home › Forum › Disability Services › Living With a Disability › Fibromyalgia

Viewing 7 reply threads
  • Author
    Posts
    • March 22, 2004 at 09:14 #7855
      Mish Mash
      Member

      Ive just been diagnosed with fibromyalgia, anyone out there know about it, or have any information it would be greatly appreciated.

      Its a bit scary for me at the moment as I dont know much about it only what I have read on the net, but I sure do have all the symptoms, which have escalated over the last couple of months.

      So any info would be great.

    • March 22, 2004 at 10:23 #11884
      Graham – Admin
      Keymaster

      That’s a bummer Mish.

      I only know two – now three with Fibromyalgia. SassyCC a member here suffers debilitating bouts of Fibro. pm her, or me, if you’d like me to on your behalf. First hand information is always best. And she’s a lovely girl.

      Many assosciate it with Cronic Fatigue. However stimuli to pain is often enhanced with Fibro. A key to management is to not push yourself physicaly or get stressed out. Lots of R and R for you Mish.

    • March 27, 2004 at 07:49 #11885
      Macka
      Participant

      It’s manageable Mish Mash.
      I know you’ll find the strength.
      Good luck mate.

      *says little prayer.

    • March 27, 2004 at 08:00 #11886
      Mish Mash
      Member

      Thanks guys for your thoughts…

      At present time Im still processing the info, and trying not to take on too much at once or make any life decisions as yet eg. do I find work or not, how will I manage with no financial backup, being self supporting.
      Im still yet to find out how it is managed, and hopefully by next week I will have some answers.

      I do know that I wont let this beat me, I still have a lot to do, and will not give up my new found life and new found passions e.g. belly dancing.

    • April 9, 2004 at 00:47 #11887
      MissApprehension
      Member

      Fybromyalgia & Chronic Fatigue http://www.immunesupport.com/library/showarticle.cfm/id/4471

      Not sure if my code works & not sure if url works but hopefully this is a link to a fybrosite I found very informative. I have had Fybro for over 10 years & although it does take it’s toll…there is some hope days where you will be able to feel you made great achievments…even if it is just a simple task such as having got through the housework you planned to do! ;) There are many associated symptoms & offset illnesses with Fybro but the hardest of all…is accepting you have it! :rolleyes: I fought against it for many years & still find the odd moments where I try to fight…but YOU CAN..live around the effects! It just means a lot of rearranging in your thinking ;) Hope the site helps…unfortunately I gotta went so son can have puter but I shall return with more!! Chin up…tis just an adventure!!!

    • April 10, 2004 at 07:27 #11888
      Mish Mash
      Member

      Thanks Missaprehension for your reply and the site.

      Yes I am sure finding out what I can do and cant do and if I cant then I dont. and I never thought how a simple household chore could be a goal. My mind attitude is positive just my body wont do what I would like some days. I am finding that if I do too much one day I pay the next.

      The one symptom I do find hard to cope with is the depression. It can drive me nuts ( so to speak). I really have to fight that one,to make myself go and do something physical, anything, then I loose energy.

      Yes just another adventure in this game of life ;)

    • May 16, 2004 at 10:12 #11889
      SassyCc
      Member

      Hi I am SassyCc. As Graybags my sweet buddy said I also have FM and a few other illnesses. I started getting symptoms around 20 dx’ed at 21 and I just turned 24. Going to Fibromyalgia message boards helped me cope after I got dx’ed. The best thing to treat our illness is go to a clinic or doctor that mainly treat FM, those that come along with it and other illnesses along the same lines. Not many doctors that should know about it don’t from lack of knowledge about it. I found a Fibromyalgia Center and they have me trying all kinds of things, I tried to get my other docs to try, that I read about on the net. I mourned for a long time and I am finally starting to pick myself up. I wanted to finish college and go to law school. That was my plan since I was a kid either that or medical school. At first all I could think about is how I wasn’t going to be able to pursue my dream. Then I got back into my photography a few years ago and now I am building my own business In Style Photography. At first I was crushed at the change of life and now I am learning to still live and not cause myself to much stress and pain. I also recommend a lot of downtime and at least two hours more than amount of sleep you prefer to get. Because of working full time and many other things I have going on I am not able to get the min of ten hours of sleep I need a night. Well I have some work to get done on my site. Feel free to PM me on here or e-mail me at sassycc@sbcglobal.net. I will pray for you. Take care and you can too find a way to live with this awful illness.
      *Sorry if this post seems choppy it is 5:08am in good ol’ Texas :doh:

      Thanks for all of the sweet words buddy of mine ;)

    • May 26, 2004 at 07:46 #11890
      Mish Mash
      Member

      Thanks for the reply Sassy.

      I know Im still new at this and still finding my way around.Yes the grief process took a while, and sometimes I still find it hard when my body wont do what it use to. I was always very physical, but now it just doesnt happen. I am still dancing, street performing etc., but have realized I can only perform for a short time, cause if I get tired Im off in the routine etc.

      The sleep also, at present Im on anti depressant to be taken at night, which helps me sleep, sometimes I dont take them and pay for it as when I dont sleep Im in pain the rest of the week. Its amazing how a little chore can take so much out of me. At present Im not working, I can pick up some work in the food services at the local football stadium, even doing that for 5hours straight can leave me exhausted and in pain. At present Im still going through the red tape with the social security office as to what do I do about work.
      Maybe I need to see a doctor that deals in FM, as my doctor is only concerned with the depression, which is ok, but its the pain that gets to me more.
      It guess it still comes back to living one day at a time.

  • Author
    Posts
Viewing 7 reply threads
  • You must be logged in to reply to this topic.